My Name is Ellie and I have Williams Syndrome!
I am so happy to be able to share my story with you.
About Ellie
My Story
I was born in 2014 and I have a unique perspective of the world. I did not find out I had Williams Syndrome until I was 6 years old. You can find more about Williams Syndrome on the WS website here. I am fortunate, because I have had little or no physical concerns regarding my heart, kidneys or calcium in my blood. However, I do experience vision, learning and developmental delays as well as gut microbiome concerns and muscle tightness and coordination. My parents have chosen to share my story to the world and connect with anyone who is interested globally.
My Family
I live with my mom, dad, sister's Maddie and Izzie, my dog Harley and our chickens and bees. We live in New England and we like to spend time outdoors, camping in our trailer and living a natural life.
What I love to do
I love playing with my dog Harley and making slime, watching shows, dancing and music, bugs and worms and spending time with friends, family and new people!
What Therapies i benefit from
After years of playing with multiple options to help me develop and enjoy my life, my parents have found the most benefit from the following:
1. Neurological reorganization - Sargent Goodchild - Current program
2. Stopping ADD/ADHD - Symmetric Tonic Neck Reflex Program - Current Program
2. Neuro-optomimetry & Vision Therapy - Dr William Padula - Current program
3. Chiropractic Care - Dr. Ryan Hewitt
4. Occupational therapy - focused on nature (Timbernook style programs) - Current Program
5. Kinesiology & Magnet Protocols (Biological and health components as needed for viruses, parasites etc. )
6. Genomic Testing & Supplementation
7. Equine Therapy - We are implementing soon!
8. Music Therapy - We are implementing soon!
Williams Syndrome Elise Photos
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CONNECT WITH MY PARENTS
Contact Us
We would love to connect with you
Copyright © 2021 Williams Syndrome story Ellie - All Rights Reserved.
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